The CUIDEME study

Determinants of burden in chilean primary caregivers of patients with dementia

Andrea Slachevsky, Marilu Budinich, Claudia Miranda-Castillo, Javier Núñez-Huasaf, Jaime R. Silva, Carlos Muñoz-Neira, Sergio Gloger, Oscar Jimenez, Bernardo Martorell, Carolina Delgado

Resultado de la investigación: Article

23 Citas (Scopus)

Resumen

Background: Caring for a person with dementia is associated with well-documented increases in burden and distress and decreases in mental health and wellbeing. Studies assessing burden in caregivers of patients with dementia and its determinants are scarce in Latin America. Objective: The main objective of this study was to assess the extent and the determinants of burden in informal primary caregivers of patients with dementia in Chile. Methods: A descriptive study was conducted using clinically validated scales to assess dementia characteristics and to measure caregiver variables. Family socio-demographic characteristics and functional status, patient functional dependency and behavioral disturbances, and caregiver psychiatric morbidity were analyzed as independent variables to determine caregiver burden. Results: Two hundred and ninety-two informal caregivers were included. There were more female (80%) than male caregivers, consisting mainly of daughters and spouses of the patients. Severe burden was reported in 63% of the caregivers, and 47% exhibited psychiatric morbidity. Burden was associated with caregiver psychiatric distress, family dysfunction, severity of neuropsychiatric symptoms and functional disability, but neither patient age, gender, nor socioeconomic status impacted burden. Conclusion: Our results underscore the importance of assessing the consequences of dementia in both caregivers and patients in order to evaluate the real biopsychosocial impact of dementia, as well as the importance of planning appropriate and effective public health interventions in Latin American countries. In addition, interventions targeting caregiver psychological distress, caregiver familial dysfunction, patient neuropsychiatric disorders, and patient functional disability could potentially diminish caregiver burden.

Idioma originalEnglish
Páginas (desde-hasta)297-306
Número de páginas10
PublicaciónJournal of Alzheimer's Disease
Volumen35
N.º2
DOI
EstadoPublished - 1 ene 2013

Huella dactilar

Caregivers
Dementia
Psychiatry
Morbidity
Latin America
Chile
Nuclear Family
Spouses
Social Class
Mental Health
Public Health
Demography
Psychology

ASJC Scopus subject areas

  • Neuroscience(all)
  • Clinical Psychology
  • Geriatrics and Gerontology
  • Psychiatry and Mental health

Citar esto

Slachevsky, A., Budinich, M., Miranda-Castillo, C., Núñez-Huasaf, J., Silva, J. R., Muñoz-Neira, C., ... Delgado, C. (2013). The CUIDEME study: Determinants of burden in chilean primary caregivers of patients with dementia. Journal of Alzheimer's Disease, 35(2), 297-306. https://doi.org/10.3233/JAD-122086
Slachevsky, Andrea ; Budinich, Marilu ; Miranda-Castillo, Claudia ; Núñez-Huasaf, Javier ; Silva, Jaime R. ; Muñoz-Neira, Carlos ; Gloger, Sergio ; Jimenez, Oscar ; Martorell, Bernardo ; Delgado, Carolina. / The CUIDEME study : Determinants of burden in chilean primary caregivers of patients with dementia. En: Journal of Alzheimer's Disease. 2013 ; Vol. 35, N.º 2. pp. 297-306.
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abstract = "Background: Caring for a person with dementia is associated with well-documented increases in burden and distress and decreases in mental health and wellbeing. Studies assessing burden in caregivers of patients with dementia and its determinants are scarce in Latin America. Objective: The main objective of this study was to assess the extent and the determinants of burden in informal primary caregivers of patients with dementia in Chile. Methods: A descriptive study was conducted using clinically validated scales to assess dementia characteristics and to measure caregiver variables. Family socio-demographic characteristics and functional status, patient functional dependency and behavioral disturbances, and caregiver psychiatric morbidity were analyzed as independent variables to determine caregiver burden. Results: Two hundred and ninety-two informal caregivers were included. There were more female (80{\%}) than male caregivers, consisting mainly of daughters and spouses of the patients. Severe burden was reported in 63{\%} of the caregivers, and 47{\%} exhibited psychiatric morbidity. Burden was associated with caregiver psychiatric distress, family dysfunction, severity of neuropsychiatric symptoms and functional disability, but neither patient age, gender, nor socioeconomic status impacted burden. Conclusion: Our results underscore the importance of assessing the consequences of dementia in both caregivers and patients in order to evaluate the real biopsychosocial impact of dementia, as well as the importance of planning appropriate and effective public health interventions in Latin American countries. In addition, interventions targeting caregiver psychological distress, caregiver familial dysfunction, patient neuropsychiatric disorders, and patient functional disability could potentially diminish caregiver burden.",
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Slachevsky, A, Budinich, M, Miranda-Castillo, C, Núñez-Huasaf, J, Silva, JR, Muñoz-Neira, C, Gloger, S, Jimenez, O, Martorell, B & Delgado, C 2013, 'The CUIDEME study: Determinants of burden in chilean primary caregivers of patients with dementia', Journal of Alzheimer's Disease, vol. 35, n.º 2, pp. 297-306. https://doi.org/10.3233/JAD-122086

The CUIDEME study : Determinants of burden in chilean primary caregivers of patients with dementia. / Slachevsky, Andrea; Budinich, Marilu; Miranda-Castillo, Claudia; Núñez-Huasaf, Javier; Silva, Jaime R.; Muñoz-Neira, Carlos; Gloger, Sergio; Jimenez, Oscar; Martorell, Bernardo; Delgado, Carolina.

En: Journal of Alzheimer's Disease, Vol. 35, N.º 2, 01.01.2013, p. 297-306.

Resultado de la investigación: Article

TY - JOUR

T1 - The CUIDEME study

T2 - Determinants of burden in chilean primary caregivers of patients with dementia

AU - Slachevsky, Andrea

AU - Budinich, Marilu

AU - Miranda-Castillo, Claudia

AU - Núñez-Huasaf, Javier

AU - Silva, Jaime R.

AU - Muñoz-Neira, Carlos

AU - Gloger, Sergio

AU - Jimenez, Oscar

AU - Martorell, Bernardo

AU - Delgado, Carolina

PY - 2013/1/1

Y1 - 2013/1/1

N2 - Background: Caring for a person with dementia is associated with well-documented increases in burden and distress and decreases in mental health and wellbeing. Studies assessing burden in caregivers of patients with dementia and its determinants are scarce in Latin America. Objective: The main objective of this study was to assess the extent and the determinants of burden in informal primary caregivers of patients with dementia in Chile. Methods: A descriptive study was conducted using clinically validated scales to assess dementia characteristics and to measure caregiver variables. Family socio-demographic characteristics and functional status, patient functional dependency and behavioral disturbances, and caregiver psychiatric morbidity were analyzed as independent variables to determine caregiver burden. Results: Two hundred and ninety-two informal caregivers were included. There were more female (80%) than male caregivers, consisting mainly of daughters and spouses of the patients. Severe burden was reported in 63% of the caregivers, and 47% exhibited psychiatric morbidity. Burden was associated with caregiver psychiatric distress, family dysfunction, severity of neuropsychiatric symptoms and functional disability, but neither patient age, gender, nor socioeconomic status impacted burden. Conclusion: Our results underscore the importance of assessing the consequences of dementia in both caregivers and patients in order to evaluate the real biopsychosocial impact of dementia, as well as the importance of planning appropriate and effective public health interventions in Latin American countries. In addition, interventions targeting caregiver psychological distress, caregiver familial dysfunction, patient neuropsychiatric disorders, and patient functional disability could potentially diminish caregiver burden.

AB - Background: Caring for a person with dementia is associated with well-documented increases in burden and distress and decreases in mental health and wellbeing. Studies assessing burden in caregivers of patients with dementia and its determinants are scarce in Latin America. Objective: The main objective of this study was to assess the extent and the determinants of burden in informal primary caregivers of patients with dementia in Chile. Methods: A descriptive study was conducted using clinically validated scales to assess dementia characteristics and to measure caregiver variables. Family socio-demographic characteristics and functional status, patient functional dependency and behavioral disturbances, and caregiver psychiatric morbidity were analyzed as independent variables to determine caregiver burden. Results: Two hundred and ninety-two informal caregivers were included. There were more female (80%) than male caregivers, consisting mainly of daughters and spouses of the patients. Severe burden was reported in 63% of the caregivers, and 47% exhibited psychiatric morbidity. Burden was associated with caregiver psychiatric distress, family dysfunction, severity of neuropsychiatric symptoms and functional disability, but neither patient age, gender, nor socioeconomic status impacted burden. Conclusion: Our results underscore the importance of assessing the consequences of dementia in both caregivers and patients in order to evaluate the real biopsychosocial impact of dementia, as well as the importance of planning appropriate and effective public health interventions in Latin American countries. In addition, interventions targeting caregiver psychological distress, caregiver familial dysfunction, patient neuropsychiatric disorders, and patient functional disability could potentially diminish caregiver burden.

KW - Alzheimer's disease

KW - caregiver

KW - dementia

KW - dependency

KW - dependency burden

KW - general health questionnaire

KW - mental health

KW - neuropsychiatric inventory

KW - psychological distress

KW - Zarit burden interview

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U2 - 10.3233/JAD-122086

DO - 10.3233/JAD-122086

M3 - Article

VL - 35

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JO - Journal of Alzheimer's Disease

JF - Journal of Alzheimer's Disease

SN - 1387-2877

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