TY - JOUR
T1 - COVID-19 and Dispositions of the Chilean Healthcare System
T2 - Sociomedical Networks in Care Decisions of Chronic Illnesses
AU - Schöngut-Grollmus, Nicolás
AU - Energici, María Alejandra
AU - Zuñiga, Natalia
N1 - Publisher Copyright:
© Copyright © 2021 Schöngut-Grollmus, Energici and Zuñiga.
PY - 2021/8/10
Y1 - 2021/8/10
N2 - This article is an empirical work on decision-making processes in the case of persons with chronic illnesses in the COVID19 pandemic context, regarding their medical care and self-care. Medical decisions are processes that guide the production of a health diagnosis or treatment, using the available information, where the patients’ preferences are often incorporated. This article tackles the impact of the pandemic on chronically ill patients’ medical decisions when the care system has been significantly altered by it. Considering that health decisions are importantly embedded in social and economic conditions, the pandemic affects a precarious care system and constrains individual possibilities. Chile has a weak support infrastructure for caregivers and a health care system that promotes private health and a low-quality public health system. Hence, the pandemic is an adverse context for chronically ill patients and it alters the conditions in which medical decisions are taken. We performed 10 interviews with chronically ill patients who took responsibility for their own health decisions: five patients diagnosed with common chronic diseases and five patients diagnosed with rare chronic diseases. After Reflexive Thematic Analysis, the results show that the Chilean health system is extremely precarious and that not many alternatives are or have been offered to chronically ill patients in the COVID19 context.
AB - This article is an empirical work on decision-making processes in the case of persons with chronic illnesses in the COVID19 pandemic context, regarding their medical care and self-care. Medical decisions are processes that guide the production of a health diagnosis or treatment, using the available information, where the patients’ preferences are often incorporated. This article tackles the impact of the pandemic on chronically ill patients’ medical decisions when the care system has been significantly altered by it. Considering that health decisions are importantly embedded in social and economic conditions, the pandemic affects a precarious care system and constrains individual possibilities. Chile has a weak support infrastructure for caregivers and a health care system that promotes private health and a low-quality public health system. Hence, the pandemic is an adverse context for chronically ill patients and it alters the conditions in which medical decisions are taken. We performed 10 interviews with chronically ill patients who took responsibility for their own health decisions: five patients diagnosed with common chronic diseases and five patients diagnosed with rare chronic diseases. After Reflexive Thematic Analysis, the results show that the Chilean health system is extremely precarious and that not many alternatives are or have been offered to chronically ill patients in the COVID19 context.
KW - chronic illness
KW - decision-making
KW - dispositions
KW - medical decisions
KW - rare diseases
KW - sociomedical networks
UR - http://www.scopus.com/inward/record.url?scp=85113393522&partnerID=8YFLogxK
U2 - 10.3389/fsoc.2021.666758
DO - 10.3389/fsoc.2021.666758
M3 - Article
AN - SCOPUS:85113393522
SN - 2297-7775
VL - 6
JO - Frontiers in Sociology
JF - Frontiers in Sociology
M1 - 666758
ER -